It is possible that you have other disabilities that your doctors and nurses are unaware of. Throughout your cancer journey you will see multiple doctors/nurses, who may not know about any other conditions you have. This can lead to things going wrong and your needs not being met, building up your anxiety and stress levels.
A hospital passport is designed to give hospital staff helpful information about your condition. This information will help them make the necessary and reasonable adjustments to the care and treatment they provide.
Your passport can include the following
- Information about how to communicate
- Explains all conditions you have
- Include any communication aids you may need
- Any medication allergies of bad reactions you've had in the past
- A place to keep appointment information
- Any questions you may have
- When you're not feeling well enough to speak
- Keep track of any side effects you might be experiencing
My personal passport
I came up with the idea of a hospital passport, due to my selective mutism, anxiety and needle phobia. I saw many different doctors, who would know little about selective mutism, or how to approach the situation, which made some situations worse.
In my passport it would explain what can make my anxiety more severe and how to approach particular things. But most importantly, I explained my selective mutism, which most people are unaware of. This passport gave me a voice and I am hoping this technique will help anyone else who is struggling.
How I planned out my passport:
|About my condition||Explains my selective mutism and needle phobia.|
What helps during treatment
|What helps to keep my anxiety low.|
How to communicate with me
|Face to face and other ways of communication.|
For more help read - 'How to Prepare for Cancer Treatment'